Dialogue with families is an essential element in directing care and services toward the real needs of patients. In order to encourage patients and their families to become more engaged in their care experience, several MUSCO projects aim to equip them with the tools they need in order to learn about the healthcare system and its stakeholders. In addition, when they wish, families can play an active role in their own care journey through specific projects led by the Initiative. The goal of this is to ensure that families have an integrative experience that provides them with tangible opportunities and the empowerment they need to get involved if they so choose.
Organize an annual event for families with a unifying theme
MUSCO Strategic Goal
Facilitate inter-institutional collaboration and dialogue for the benefit of patients, across the Initiative and beyond
Contribute to advancing knowledge
Promote good practices
Inform patients and families
Inform and educate healthcare professionals
Promote interaction between patients, families, professionals and industry partners
3 editions of the annual MUSCO event have been held since the launch of the Initiative, with more to come!
To watch or re-watch the lectures, the family forum and families’ video testimonials, visit our Resources section.
Cerebral Palsy, Let's Talk About It! 2019 (1st Edition )
In the morning, various speakers talked about preventive treatments and surgical approaches for certain deformities. In the afternoon, participants were invited to interact during a family forum on the favourable conditions enabling children to transition to an active life, the reconciliation of the impacts of motor deficiency with family life and family involvement in improvement projects. In addition, 18 community organizations and stakeholders hosted booths in the Exhibitors’ Hall to answer families’ questions.
Cerebral Palsy, Let's Talk About It! 2020 (2nd Edition)
Following the success of the first edition of this event and due to pandemic-related restrictions, a new virtual formula was developed to explore three themes identified in the satisfaction survey of the previous edition in more depth: (1) medical concerns and rehabilitation, (2) surgery and (3) social and community issues. In addition to attending the various virtual presentations, participants were encouraged to interact and ask questions, with discussion slots scheduled at the end of the morning.
Skeletal Dysplasia, Let's Talk About It! 2021 (3rd Edition)
Held in a virtual format for a second consecutive year, the third edition of the annual MUSCO event focused this time on the theme of skeletal dysplasia. Families, professionals and community partners, among others, gathered for a half-day filled with rich content! The morning’s program included a mix of conferences and testimonials on various topics related to genetics, medical follow-up, rehabilitation, different surgeries as well as socio-community resources and issues.
The event was divided into 3 blocks reflecting the chronology of major events in the life of a child with skeletal dysplasia:
- Block 1: From birth
- Block 2: The period from childhood to adolescence
- Block 3 : On the way to adulthood