Improving the quality of life of patients and families begins with a sense of support and a seamless experience between institutions. A number of projects have been developed within the scope of MUSCO to allow patients and their families to feel supported and to streamline and facilitate the corresponding administrative procedures. This involves providing tools and resources to improve logistics and families’ experiences throughout their care trajectory.

MUSCO Projects
Collaboration

Educational Technology

Project leader

To be determined

The project

To develop educational technology that supports patients and their families in their life journey and reinforces self-esteem

MUSCO Strategic Goal

Provide direct support to patients and their families

Project Objectives

  1. 1

    Compile factual information about the patient’s life journey

  2. 2

    Enable parents to anticipate and prepare for next steps

  3. 3

    Foster emotional dialogue within the family

  4. 4

    Reinforce the child’s self-esteem and resilience

  5. 5

    Enable caregivers to map the child’s emotional journey

  6. 6

    Enable the family and the child to share milestones

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Progress Report

Progress Report
Progress Report
Progress Report
Progress Report
Progress Report
Progress Report
Progress Report
Progress Report

At this stage, the idea would be to develop an application that will allow the user to outline the child’s life path, with an avatar that will change based on their emotions and using different scenarios to identify their strengths.

In order to refine the project’s orientation, a working group was set up for the ideation phase, conducted in collaboration with an external partner, Yapouni, which specializes in the development of therapeutic and playful games. The objective of this process is to map the major events in the life of a child with musculoskeletal disorders in relation to the difficulties experienced by families and the resources available. This exercise will make it possible to define the specific functionalities of the application that could be developed.