Improving the quality of life of patients and families begins with a sense of support and a seamless experience between institutions. A number of projects have been developed within the scope of MUSCO to allow patients and their families to feel supported and to streamline and facilitate the corresponding administrative procedures. This involves providing tools and resources to improve logistics and families’ experiences throughout their care trajectory.
Training volunteers to assist in the care of patients and families with complex needs.
MUSCO Strategic Goal
Provide direct support to patients and their families
Improve the patient and parent experience when they come to the hospital
Strengthen the support of families
Allow parents to have peace of mind when they come to the hospital
Enable partner institutions to benefit from a shared resource pool
The general idea of this project is to allow parents to have peace of mind when they have to be away from their child momentarily when they come with him/her to the hospital (waiting for follow-up meetings, in hospitalization, etc.).
An assessment phase was conducted in collaboration with representatives from the volunteer and Childlife services of the partner institutions, as well as representatives from the community and a family. This phase made it possible to explore the current services and the needs of the families and to identify avenues for improvement.
Following this assessment phase, the concept of the project became clearer. The idea is to develop common training in complex care to enable volunteers to respond to the needs of the child and his family in certain specific situations. Volunteers would thus be better equipped to intervene as necessary in the patient’s journey according to the needs expressed by the families.
In addition to the training module, the working group is also considering a component that would allow volunteers from different pediatric institutions to share their realities and help each other in their practice.