Two impact assessment phases have been carried out by the NISKA cooperative, in 2021 and 2024.
During the first assessment phase, an action plan was drawn up to address the issues identified. Several actions were implemented with the aim of maximizing the benefits of MUSCO and strengthening collaboration.
In this second, more recent phase of the study, the aim was to analyze the data in order to draw conclusions, document the evolution of partnership work and validate potential strategies for sustainability.
Why this process?
The overall aim was to measure the Initiative’s success. These were milestones that enabled us to take stock of the changes brought about by MUSCO. With a view to continuous improvement, the results of the study in 2021 were used to fuel further reflection and readjust MUSCO’s orientations.
In 2024, the collective work was aimed at highlighting MUSCO’s positive effects, while also highlighting its strengths and persistent challenges, in several areas identified during the first phase:
- Patients’ experience of care and services;
- Collaborations between families and caregivers;
- Collaborations between caregivers and facilities;
- Collaboration between the four centers and external partners.
How?
The objectives and methodology of the impact study were based on the Initiative’s change paths. These pathways served as guidelines for the process, and helped to identify which MUSCO activities were generating change.
The established methodology included focus groups and individual interviews with patients, families, doctors, professionals, foundations and facility management, as well as external partners, among others. All were invited to share their feedback on the changes brought about by MUSCO and their vision for the future.
For the purposes of the study, evaluation committees* were set up to fuel reflection and mobilize stakeholders. These were made up of a variety of MUSCO collaborators, reflecting the diversity of expertise and ensuring that the different partners involved were represented.
- Linda Moreau, Nia’s mother, MUSCO Patient Expert
- Stéphanie Renaud Beaudin, Nathan’s mother, MUSCO Patient Expert
- Stefan Parent, Chief, Orthopedic Services, CHU Sainte-Justine
- Jacques Boissonneault, Hospital Administrator, Shriners Hospitals for Children — Canada
- Cindy McCartney, Associate Director of Nursing & Women’s Health Mission, Montreal Children’s Hospital
- Camillo Lisio, Executive Director (interim), Mirella & Lino Saputo Foundation
- Julie Letendre, Inter-establishment Navigator, MUSCO
- Stephanie Gould, Inter-establishment Navigator, MUSCO
- Aurélie Vigné, Manager, MUSCO
- Solène Tanguay, Project and Communications Manager, MUSCO
*The list reflects the titles and positions at the time of the Study in 2021
- Aurélie Vigné, Manager, MUSCO
- Caroline Marie Fidalgo, Patient-Expert, Member of MUSCO’s Advisory Pole
- Camille Brosseau, Inter-establishment Navigator, MUSCO
- Claude Nadeau, Clinical-Administrative Coordinator, Technopole et Technical and Technological Aids Cluster, Marie Enfant Rehabilitation Centre
- Gwenaëlle Trottet, Clinical-Administrative Coordinator, Trauma and Burn Trajectory, CHU Sainte-Justine
- Jacques Boissonneault, Executive Director, Shriners Hospitals for Children – Canada
- Lise Gagnon, Head of Care and Services, Psychoeducation, Specialized Education, CHU Sainte-Justine
- Marie Beauséjour, Researcher, Université de Sherbrooke
- Stéphanie Renaud Beaudin, Patient-Expert, member of the MUSCO Advisory Pole
*The list reflects the titles and positions at the time of the Study in 2024