Practical Guide on the Integration of Patient Resources

The MUSCO Initiative strives to put families’ voices front and centre of all its projects. But this requires the input of parents, patients and caregivers serving as Patient Resources. The integration of families into the Initiative’s working groups is a process that must be supported by all MUSCO stakeholders. This was the impetus behind the creation of the Practical Guide on the Integration of Patient Resources, which resulted from the discussions that took place during the Workshop on the Integration of Patient Resources.