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When Aurélie Vigné took charge of the deployment of the MUSCO program in 2018, her first impressions were of a “giant jigsaw puzzle” that had to be assembled with the help of the multiple stakeholders to be mobilized. Each of the facilities held a part of the answer that could be provided to support patients … Continued

Right-click on the image below to download the signatures in English and French, and don’t forget to add the hyperlink to www.musco.ca!

Le CHU Sainte-Justine compte un large éventail de projets majeurs développés au sein de son établissement dans le cadre de MUSCO. Chacun d’eux a un objectif bien spécifique, mais une même volonté les rassemble : celle d’améliorer la trajectoire et la qualité de vie des patient(e)s. Certains de ces projets sont sortis du portefeuille de … Continued

What do Annie Pinet, Angélique Bélec, Caroline Marie Fidalgo, Daniel Bélec, Isabelle Courchesne and Stéphanie Renaud-Beaudin have in common? They are all parents of children or children living with a neuro-musculoskeletal condition, and are currently members of MUSCO’s Advisory Pole. Three times a year, this entity at the heart of the Initiative’s governance allows patients … Continued

On October 30, the very first Quebec forum on polyimpairment (in French only) will be held, organized in connection with the project to build a “Centre d’expertise et de services en polyhandicap (CESP) (in French only) ” whose mission would be to raise awareness of the issues faced by people with polyimpairment, and to support … Continued

Following exchanges between one of the MUSCO working groups working on the subject and the SPORC ((Sainte-Justine Pediatric Orthopaedic Review Cours) working group, which had the same ambition, the idea of a frontline pediatric orthopedic day took shape with a program that was thought out by a merged MUSCO-SPORC working committee. As a reminder, as … Continued

Within the framework of the Relay Project, the very first edition of the MUSCO conference will be held on June 1st. This event is primarily intended for pediatric volunteers working in the Initiative’s partner institutions who are interested in working with patients with special needs. This day will be a unique opportunity to learn more … Continued

A neuropsychologist by training, Madeleine Fortin first worked in trauma with adults in acute care and rehabilitation. It was after her last maternity leave that she decided to take the plunge and return to pediatrics. Having had the opportunity to accompany young patients on their journey in the past, Madeleine knew the richness and beauty … Continued

The fourth edition of this event was a great success and the pleasure of meeting in person after two years of virtual editions was palpable. With the theme of Adapted Sport: Have fun and be Healthy! The event brought together more than 100 participants in person and online to listen to captivating conferences on various … Continued

Our little mouse is writing to you to share the progress of the projects he supports. Find out how the teams at CHU Sainte-Justine, at its Marie Enfant Rehabilitation Center, at the Montreal Children’s Hospital and at the Shriners Hospitals for Children – Canada have been working with and for patients and families since the … Continued

Introduction Welcome to the Website of MUSCO (URL du site Web). Your use of our Website indicates your agreement with the following Terms of Use. If you do not agree to be bound by and comply with these Terms of Use, please do not access or use this Website. Intellectual property notice The MUSCO Website, … Continued

In this section you will find all the videos produced as part of the MUSCO Initiative, whether in the form of testimonials, informational videos, presentations or panel discussions. In particular, you will be able to watch several specialists and experts who gathered at the MUSCO Event project to watch a number of presentations by specialists … Continued

MUSCO is featured on the web platform L’accompagnateur which lists resources available to families This platform is very useful to families looking for information and reference material as they navigate the multitude of local, municipal, provincial and federal resources. It is also something healthcare professionals are encouraged to share with their patients as they strive … Continued

The goal of many MUSCO projects is to equip families and contributors in order to support them in their journey and partnership efforts. As such, several resources have been developed and identified within the scope of these projects. Find out more about our educational videos, documentary resources and other external resources.

How important is MUSCO for families? To what needs does MUSCO respond? How does MUSCO impact collaboration? Why MUSCO?

In addition to supporting the institutions in their efforts to attain the ultimate goal of improving the quality of life of patients and families, MUSCO’s coordination team and its shared resources serve as facilitators, supporting opportunities for dialogue amongst teams and professionnals who wish to develop new collaborations. These emerging collaborations echo the spirit of … Continued

Why this process? The overall aim was to measure the Initiative’s success. These were milestones that enabled us to take stock of the changes brought about by MUSCO. With a view to continuous improvement, the results of the study in 2021 were used to fuel further reflection and readjust MUSCO’s orientations. In 2024, the collective … Continued

Are you a patient or parent of a child who recieves care at MUSCO’s partner establishments? Would you like to get involved in improvement projects? Learn more about the Patient Resource role and join forces with our collaborators! Please feel free to direct any other questions or enquiries to the Initiative’s coordination team.

MUSCO uses its own vocabulary with regard to family involvement and the nature of the projects that are carried out within the Initiative. The following lexicon can therefore be helpful in clarifying certain concepts. Working Group Team formed specifically to carry out MUSCO projects. Each of the working groups is supervised by a clearly identified … Continued

22 project areas to develop over 7 years Initially planned for 5 years, a 2-year extension has been granted by the Executive Committee to mainly finalize the collaborative projects by June 2025, based on the initial funding. The results of the Impact Study conducted by the Niska Cooperative had demonstrated the full relevance of the work accomplished while … Continued

Why this governance structure? Representation and communication MUSCO brings together four pediatric institutions as part of a multi-stakeholder process that must be aligned in a structured, coherent manner with the Initiative’s objectives. The corresponding governance bodies therefore include representatives of each of the partner institutions, as well as their respective hospital foundations and the Mirella … Continued

The 7 founding partners that make up the MUSCO Initiative have developed more than 20 projects since its launch in 2019. We are extremely grateful for the contributions of the teams within each of these institutions and foundations. The CHU Sainte-Justine Foundation’s mission is to engage the community and support Sainte-Justine in its pursuit of excellence … Continued

Mission MUSCO’s mission is to foster collaboration and mobilize partners to optimize the care and services provided to patients and their families. Vision That a collaborative culture is applied on a daily basis for the benefit of patients requiring complex care and suffering from neuromusculoskeletal disorders Values Collaboration Engaging in a collaborative approach based on … Continued

Les projets issus de MUSCO visent divers objectifs et auront différents impacts. Ils se regroupent en cinq grandes catégories d’intervention : l’accompagnement des familles, le renforcement du pouvoir d’implication des familles, l’amélioration des soins et services sur le plan chirurgical et le plan de la recherche clinique, puis finalement, l’aménagement et l’équipement au sein des … Continued

Children with neuro-musculoskeletal disorders and who require complex care too often face issues with regard to access and social integration throughout their care journey.