Search results

Category

Keyword

Page

Newsletter December 2023

While the review of the strategic plan has shown that the Initiative is very positively perceived by collaborators, there is still a long way to go: MUSCO is at a turning point, and a new milestone is about to be reached. Members of the Initiative’s Bureau, Isabelle Demers, Assistant to the Chief Executive Officer, CHU … Continued

See page Read "Newsletter December 2023"

Page

Newsletter December 2023

The DNA Sequencing Project at the Shriners Hospital for Children – Canada (Shriners) combines several components of the MUSCO Initiative: the acquisition of cutting-edge equipment enabling significant advances in research, an inter-institutional collaboration with CHU Sainte-Justine with the hiring of a genetic counselor, and the combination of research and clinical advances enabled by the establishment … Continued

See page Read "Newsletter December 2023"

Page

Newsletter December 2023

The major projects carried out at the Centre de réadaptation Marie Enfant (Marie Enfant) over the past five years have been particularly affected by the pandemic and the resulting shortage of manpower. What was once an exceptional situation became a new reality, bringing with it a host of challenges. Fortunately, the teams were able to … Continued

See page Read "Newsletter December 2023"

Page

Newsletter December 2023

CHU Sainte-Justine is home to a wide range of major MUSCO projects. Each has its own specific objective, but they all share a common goal: to improve the trajectory and quality of life of the patients. Some of these projects will have left the Initiative’s portfolio in June 2023, but others have been authorized by … Continued

See page Read "Newsletter December 2023"

Page

Infolettre décembre 2023

Le CHU Sainte-Justine compte un large éventail de projets majeurs développés au sein de son établissement dans le cadre de MUSCO. Chacun d’eux a un objectif bien spécifique, mais une même volonté les rassemble : celle d’améliorer la trajectoire et la qualité de vie des patient(e)s. Certains de ces projets sont sortis du portefeuille de … Continued

See page Read "Infolettre décembre 2023"

Page

Newsletter December 2023

The Mirella and Lino Saputo Foundation Chair in Pediatric Surgical Education and Patient and Family Centered Care was created in 2018 with two main mandates: to advance pediatric surgical education locally, nationally and internationally, and to integrate a culture of patient- and family-centered care into all aspects of clinical care for pediatric surgical patients. Officially … Continued

See page Read "Newsletter December 2023"

Page

Newsletter December 2023

What do Annie Pinet, Angélique Bélec, Caroline Marie Fidalgo, Daniel Bélec, Isabelle Courchesne and Stéphanie Renaud-Beaudin have in common? They are all parents of children or children living with a neuro-musculoskeletal condition, and are currently members of MUSCO’s Advisory Pole. Three times a year, this entity at the heart of the Initiative’s governance allows patients … Continued

See page Read "Newsletter December 2023"

Page

Newsletter – August 2023

On October 30, the very first Quebec forum on polyimpairment (in French only) will be held, organized in connection with the project to build a “Centre d’expertise et de services en polyhandicap (CESP) (in French only) ” whose mission would be to raise awareness of the issues faced by people with polyimpairment, and to support … Continued

See page Read "Newsletter – August 2023"

Page

Newsletter – August 2023

With two years left to complete the projects, a review of MUSCO’s 2023-2025 Strategic Plan was undertaken with the help of consulting firm IDMRS (in French only). The consultation process ran from January to March 2023, and mobilized nearly 50 people involved with the Initiative, including members of the Advisory Pole, the Executive Committee, the … Continued

See page Read "Newsletter – August 2023"

Page

Newsletter – August 2023

On June 1, the first-ever MUSCO Conference for pediatric volunteers working in the Initiative’s partner establishments took place, with the unveiling of the very first information capsule in a series dedicated to complex care. Both the series and the symposium are part of the Relay project, the general idea of which is to give parents … Continued

See page Read "Newsletter – August 2023"

Page

Newsletter – August 23

The Movement Lab project aims to improve movement analysis practices across Quebec. Approved by the Executive Committee as a collaborative project within the Initiative in 2021, it brings together not only the four MUSCO partner establishments, but also the Centre interdisciplinaire de recherche en réadaptation et intégration sociale (CIRRIS) and Université Laval. It is based … Continued

See page Read "Newsletter – August 23"

Page

Newsletter – August 2023

The primary objective of the Patient Trajectory project is to implement solutions that will make the inter-establishment trajectory clearer, smoother and more comprehensible for patients, so that they can be directed towards the appropriate care and services. To grasp the scope of this project, we need to look at the list of multiple stakeholders who … Continued

See page Read "Newsletter – August 2023"

Page

Newsletter – August 2023

Canada’s first-ever multidisciplinary conference on Enhanced Recovery after Surgery (ERAS) in pediatrics was held on April 28. The conference was part of the Enhanced Recovery project developed by the Mirella and Lino Saputo Foundation Chair in Pediatric Surgical Education and Patient and Family Centered Care, whose main objective is to improve the recovery of patients … Continued

See page Read "Newsletter – August 2023"

Page

Newsletter – May 2023

Following exchanges between one of the MUSCO working groups working on the subject and the SPORC ((Sainte-Justine Pediatric Orthopaedic Review Cours) working group, which had the same ambition, the idea of a frontline pediatric orthopedic day took shape with a program that was thought out by a merged MUSCO-SPORC working committee. As a reminder, as … Continued

See page Read "Newsletter – May 2023"

Page

Newsletter – May 2023

Within the framework of the Relay Project, the very first edition of the MUSCO conference will be held on June 1st. This event is primarily intended for pediatric volunteers working in the Initiative’s partner institutions who are interested in working with patients with special needs. This day will be a unique opportunity to learn more … Continued

See page Read "Newsletter – May 2023"

Page

Newsletter – May 2023

A neuropsychologist by training, Madeleine Fortin first worked in trauma with adults in acute care and rehabilitation. It was after her last maternity leave that she decided to take the plunge and return to pediatrics. Having had the opportunity to accompany young patients on their journey in the past, Madeleine knew the richness and beauty … Continued

See page Read "Newsletter – May 2023"

Page

Newsletter – May 2023

The fourth edition of this event was a great success and the pleasure of meeting in person after two years of virtual editions was palpable. With the theme of Adapted Sport: Have fun and be Healthy! The event brought together more than 100 participants in person and online to listen to captivating conferences on various … Continued

See page Read "Newsletter – May 2023"

Page

Newsletter – May 2023

Recruited as part of the MUSCO DNA Sequencing project at the Shriners Hospital for Children – Canada, which supports a cutting-edge program to identify mutations associated with inherited musculoskeletal disorders, Valancy Miranda divides her time between the Shriners Hospital and the CHU Sainte-Justine. The major benefit she sees in bridging these two institutions is that … Continued

See page Read "Newsletter – May 2023"

Page

Newsletter – November 2022

The MUSCO team is welcoming two new recruits who are lending a hand in the development of the Initiative’s projects. Camille Brosseau has been recruited as MUSCO’s Inter-establishment Navigator (IEN), on an interim basis, to replace Julie Letendre during her maternity leave, and Katharina Bourgin has taken over from Solène Tanguay as Project and Communication … Continued

See page Read "Newsletter – November 2022"

Page

Newsletter – November 2022

Following several very stimulating brainstorming meetings, the ideation group working on the educational technology project identified seven main steps in the patient’s journey, three of which were retained by the Executive Committee as the main axes for developing the project in concrete terms. Going forward, efforts will therefore focus on: (1) the pre-diagnosis stage (the … Continued

See page Read "Newsletter – November 2022"

Page

Newsletter – November 2022

Marie Enfant’s Amputee and Musculoskeletal Lesions Program offers specialized and subspecialized services for children aged 0 to 18 in Quebec and welcomes young people and their families to identify their needs and define the objectives to be pursued. However, issues of increasing demands complicate care. This is why a reflection on the trajectory of the … Continued

See page Read "Newsletter – November 2022"

Page

Newsletter – November 2022

This is a mobilization of which the three representatives involved in the Initiative Office and who are supervising the MUSCO Manager, Cindy McCartney, Associate Director of Nursing & Women’s Health Mission, Montreal Children’s Hospital, Isabelle Demers, Assistant to the Chief Executive Officer, CHU Sainte-Justine, and Jacques Boissonneault, Hospital Administrator, Shriners Hospital for Children – Canada, … Continued

See page Read "Newsletter – November 2022"

Page

Newsletters

Our little mouse is writing to you to share the progress of the projects he supports. Find out how the teams at CHU Sainte-Justine, at its Marie Enfant Rehabilitation Center, at the Montreal Children’s Hospital and at the Shriners Hospitals for Children – Canada have been working with and for patients and families since the … Continued

See page Read "Newsletters"

Page

Newsletter – November 2022

There are many reasons why Annie Pinet and Daniel Bélec joined the MUSCO Initiative as Patient Experts. First and foremost, they wanted to get involved and help, but they also wished to share their experience: “My daughter Angélique Bélec has regularly attended the four children’s hospitals. […] It’s always touching when it comes to sick … Continued

See page Read "Newsletter – November 2022"

Page

Terms of use

Introduction Welcome to the Website of MUSCO (URL du site Web). Your use of our Website indicates your agreement with the following Terms of Use. If you do not agree to be bound by and comply with these Terms of Use, please do not access or use this Website. Intellectual property notice The MUSCO Website, … Continued

See page Read "Terms of use"

Page

Videos

In this section you will find all the videos produced as part of the MUSCO Initiative, whether in the form of testimonials, informational videos, presentations or panel discussions. In particular, you will be able to watch several specialists and experts who gathered at the MUSCO Event project to share knowledge about cerebral palsy in 2019 … Continued

See page Read "Videos"

Testimonial

Caroline Marie Fidalgo

How important is MUSCO for families?  Q : Why did you feel motivated to get involved with MUSCO? A : My son was diagnosed in 2016. Because his disease is multisystemic, he is seen regularly by a dizzying number of doctors, specialists and other professionals. At the time we were approached to get involved with … Continued

Read more Read "Caroline Marie Fidalgo"

Testimonial

Stephanie Gould

To what needs does MUSCO respond? Q : What is your relationship with the families who benefit from MUSCO? A : I am an additional resource for families. Because I am very familiar with the services offered by each partner institution and I work closely with the four sites, I can make the communication and … Continued

Read more Read "Stephanie Gould"

Testimonial

Stefan Parent

How does MUSCO impact collaboration? Q : How does the MUSCO Initiative contribute to overcoming barriers to inter-institutional collaboration? What are some of the winning conditions you have observed? A: Since the launch of the Initiative, we have successfully organized interdisciplinary clinics that bring together specialists from the four participating pediatric centres to provide access … Continued

Read more Read "Stefan Parent"

Testimonial

Margaret Ruddy

How does MUSCO impact collaboration? Q : How does inter-institutional collaboration affect families’ experience? How has the MUSCO Initiative changed your perspective in this respect? A : Since the start of the MUSCO Initiative, as I participated in different discussions and working groups with our partners, I have noticed that inter-establishment communication has improved significantly. … Continued

Read more Read "Margaret Ruddy"

Testimonial

Maryse St-Onge

How does MUSCO impact collaboration? Q : Why is it important to stimulate collaboration between institutions? What is MUSCO’s role in this respect? A : The health professionals at the Marie Enfant Rehabilitation Centre welcome no less than 5,000 children each year from multiple pediatric health institutions within Montreal and the province. Their interventions depend … Continued

Read more Read "Maryse St-Onge"

Testimonial

Jacques Boissonneault

How does MUSCO impact collaboration? Q : What are the main benefits associated with an inter-institutional collaboration initiative like MUSCO? Why is it important to work alongside other healthcare institutions? A : The MUSCO Initiative is an important driver of collaborative efforts among pediatric institutions in the Montreal community. It allows us to pool our … Continued

Read more Read "Jacques Boissonneault"

Testimonial

Claude Pinard

Why MUSCO? Q : What led to the creation of MUSCO? A: Before MUSCO was launched, Mr. and Mrs. Saputo were considering the type of philanthropy they wanted to support. They were trying to think outside the box to increase the impact they could have on patients and families. The Foundation had been approached by … Continued

Read more Read "Claude Pinard"

Page

Supporting Families

MUSCO is featured on the web platform L’accompagnateur which lists resources available to families This platform is very useful to families looking for information and reference material as they navigate the multitude of local, municipal, provincial and federal resources. It is also something healthcare professionals are encouraged to share with their patients as they strive … Continued

See page Read "Supporting Families"

Page

Resources

The goal of many MUSCO projects is to equip families and contributors in order to support them in their journey and partnership efforts. As such, several resources have been developed and identified within the scope of these projects. Find out more about our educational videos, documentary resources and other external resources.

See page Read "Resources"

Page

Emerging Collaborations

In addition to supporting the institutions in their efforts to attain the ultimate goal of improving the quality of life of patients and families, MUSCO’s coordination team and its shared resources serve as facilitators, supporting opportunities for dialogue amongst teams and professionnals who wish to develop new collaborations. These emerging collaborations echo the spirit of … Continued

See page Read "Emerging Collaborations"

Page

Impact Study

Why this process? The overall objective of this process was to measure the Initiative’s success in improving care and services. It is a milestone that allows us to report on the changes that MUSCO has already brought about for the families who have benefited from its various projects and for the institutions that have contributed … Continued

See page Read "Impact Study"

Page

Contact us

Are you a patient or parent of a child who recieves care at MUSCO’s partner establishments? Would you like to get involved in improvement projects? Learn more about the Patient Resource role and join forces with our collaborators! Please feel free to direct any other questions or enquiries to the Initiative’s coordination team.

See page Read "Contact us"

Page

Lexicon

MUSCO uses its own vocabulary with regard to family involvement and the nature of the projects that are carried out within the Initiative. The following lexicon can therefore be helpful in clarifying certain concepts. Working Group Team formed specifically to carry out MUSCO projects. Each of the working groups is supervised by a clearly identified … Continued

See page Read "Lexicon"

Page

MUSCO Strategic Plan

22 project areas to develop over 7 years Initially planned for 5 years, a 2-year extension has been granted by the Executive Committee to mainly finalize the collaborative projects by June 2025, based on the initial funding. The results of the Impact Study conducted by the Niska Cooperative had demonstrated the full relevance of the work accomplished while … Continued

See page Read "MUSCO Strategic Plan"

Page

Governance

Why this governance structure? Representation and communication MUSCO brings together four pediatric institutions as part of a multi-stakeholder process that must be aligned in a structured, coherent manner with the Initiative’s objectives. The corresponding governance bodies therefore include representatives of each of the partner institutions, as well as their respective hospital foundations and the Mirella … Continued

See page Read "Governance"

Page

Founding partners

The 7 founding partners that make up the MUSCO Initiative have developed more than 20 projects since its launch in 2019. We are extremely grateful for the contributions of the teams within each of these institutions and foundations. The CHU Sainte-Justine Foundation’s mission is to engage the community and support Sainte-Justine in its pursuit of excellence … Continued

See page Read "Founding partners"

Page

Mission and values

Mission MUSCO’s mission is to foster collaboration and mobilize partners to optimize the care and services provided to patients and their families. Vision That a collaborative culture is applied on a daily basis for the benefit of patients requiring complex care and suffering from neuromusculoskeletal disorders Values Collaboration Engaging in a collaborative approach based on … Continued

See page Read "Mission and values"

Page

All projects

Les projets issus de MUSCO visent divers objectifs et auront différents impacts. Ils se regroupent en cinq grandes catégories d’intervention : l’accompagnement des familles, le renforcement du pouvoir d’implication des familles, l’amélioration des soins et services sur le plan chirurgical et le plan de la recherche clinique, puis finalement, l’aménagement et l’équipement au sein des … Continued

See page Read "All projects"

Page

Home

Children with neuro-musculoskeletal disorders and who require complex care too often face issues with regard to access and social integration throughout their care journey. 

See page Read "Home"