{"id":3302,"date":"2023-12-14T14:15:25","date_gmt":"2023-12-14T18:15:25","guid":{"rendered":"https:\/\/musco.ca\/?page_id=3302"},"modified":"2023-12-18T07:09:30","modified_gmt":"2023-12-18T11:09:30","slug":"newsletter-december-2023-five-years-advisory-pole","status":"publish","type":"page","link":"https:\/\/musco.ca\/en\/newsletter-december-2023-five-years-advisory-pole\/","title":{"rendered":"Newsletter December 2023"},"content":{"rendered":"
\n Content with Musco background<\/span>\n \n \n \n\n

Five years since the creation of MUSCO’s Advisory Pole<\/strong><\/h2>\n\n\n\n

the voice of families active in the Initiative<\/p>\n\n\n

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What do Annie Pinet, Ang\u00e9lique B\u00e9lec, Caroline Marie Fidalgo, Daniel B\u00e9lec, Isabelle Courchesne and St\u00e9phanie Renaud-Beaudin have in common? They are all parents of children or children living with a neuro-musculoskeletal condition, and are currently members of MUSCO’s Advisory Pole. <\/p>\n\n\n\n

Three times a year, this entity at the heart of the Initiative’s governance allows patients and families to be concretely involved in the reflections and actions carried out within the Initiative as a whole, and to enrich discussions by sharing their varied perspective. After all, parents remain “the best professionals for their children”, to use Caroline Marie’s expression, and being able to benefit from their advice and experiential knowledge is a valuable advantage for all MUSCO collaborators.<\/p>\n<\/div><\/div>\n\n\n\n

Why participate in the Advisory Pole?<\/mark><\/strong><\/p>\n\n\n\n

All of us, whether we’re the mother or father of a child with special needs, or a patient ourselves, often go through moments of doubt and helplessness. And yet we keep moving forward. It’s to move forward collectively and try to sweeten the lives of our children and those of the parents we rub shoulders with in the hospital corridors or on social networks that we have each decided to participate in a committee such as MUSCO’s Advisory Pole.<\/p>quote from the word of the Advisory Pole in MUSCO’s 2020-2021 annual activity report.<\/cite><\/blockquote>\n\n\n\n

How are members recruited?<\/mark><\/strong><\/p>\n\n\n\n

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Members of the Advisory Pole are recruited with the help of the Inter-establishment Navigators (IEN), who consult with the teams in the field. As part of this process, and as far as possible, the aim is to achieve a certain representativeness in terms of diagnoses, career paths, socio-professional categories and the involvement of mothers, fathers and\/or patients. True to their role as “wise people” with consultative and reflective powers, the members recruited ensure that the involvement of children and families is central to MUSCO’s actions and innovations, and that there are appropriate responses to identified needs.<\/p>\n<\/div><\/div>\n\n\n\n

What is the Advisory Board’s mandate?<\/mark><\/strong><\/p>\n\n\n\n