{"id":4506,"date":"2024-12-18T04:55:45","date_gmt":"2024-12-18T08:55:45","guid":{"rendered":"https:\/\/musco.ca\/?p=4506"},"modified":"2024-12-20T12:41:54","modified_gmt":"2024-12-20T16:41:54","slug":"newsletter-december-2024-focus-groups","status":"publish","type":"post","link":"https:\/\/musco.ca\/en\/newsletter-december-2024-focus-groups\/","title":{"rendered":"Newsletter December 2024"},"content":{"rendered":"
\n Content with Musco background<\/span>\n \n \n \n\n

Advances in the Educational Technology project<\/strong><\/h2>\n\n\n\n

to support young people in their life paths<\/p>\n\n\n

\n
\"\"<\/figure><\/div>\n\n<\/div>\n\n \n\n\n\n

Following an initial brainstorming phase, two directions were chosen for the Educational Technology<\/a> project to support patients and families: 1) a \u201cmemo book\u201d to keep track of appointments, results and important information related to the child’s condition during the course of care, and 2) a tool offering strategies to help children build self-esteem, share emotions and connect with their families and caregivers. In short, the aim was to develop a tool to help families on both a practical and emotional level, throughout their trajectory.<\/p>\n\n\n\n

A new working committee to centralize expertise<\/mark><\/strong><\/p>\n\n\n\n

Having begun with an ideation phase to identify potential needs across the major events in the care pathway of a child with neuro-musculoskeletal disorders, the project has evolved over the past two years. It turned out that the first need identified – for a form of ‘memo book’ – could be met by an application currently under development at the Montreal Children’s Hospital. The decision was therefore taken to focus jointly on the second objective: Supporting young people’s self-esteem. <\/p>\n\n\n\n

A working committee was set up to bring together the expertise of each center to work more concretely on the project. Some fifteen members from the partner establishments, a Patient-Resource and a community representative with experience in application development met on several occasions to co-design the project’s content and drive it forward.<\/p>\n\n\n\n

The committee members are:<\/mark><\/strong><\/p>\n\n\n\n