Dialogue with families is an essential element in directing care and services toward the real needs of patients. In order to encourage patients and their families to become more engaged in their care experience, several MUSCO projects aim to equip them with the tools they need in order to learn about the healthcare system and its stakeholders. In addition, when they wish, families can play an active role in their own care journey through specific projects led by the Initiative. The goal of this is to ensure that families have an integrative experience that provides them with tangible opportunities and the empowerment they need to get involved if they so choose.
Advisory Pole
Project leaders
The project
Recruit parents and patients to participate in the Advisory Pole of the Initiative
MUSCO Strategic Goal
Promote the participation of families in decisions that relate to care processes.
Project Objectives
Progress Report
The Advisory Pole, one of the Initiative’s governance bodies of the Initiative, is currently composed of six Patient Experts who meet to provide input and share their needs:
- Annie Pinet, Mia’s mother
- Angélique Bélec, patient
- Caroline Marie Fidalgo, Alex Olivier’s mother
- Daniel Bélec, Angélique’s father
- Isabelle Courchesne, Angélique’s mother
- Stéphanie Renaud Beaudin, Nathan’s mother
The experience and expertise of the members of the Pole have already helped to guide several MUSCO activities, including:
- The needs associated with the Educational Technologies project
- The relevance of the role of the MUSCO Inter-establishment Navigator
- Priority needs concerning the relay that could be provided to families within the hospital setting
Patient Expert recruiting efforts are ongoing, and the Advisory Pole continues to meet three times per year.