Dialogue with families is an essential element in directing care and services toward the real needs of patients. In order to encourage patients and their families to become more engaged in their care experience, several MUSCO projects aim to equip them with the tools they need in order to learn about the healthcare system and its stakeholders. In addition, when they wish, families can play an active role in their own care journey through specific projects led by the Initiative. The goal of this is to ensure that families have an integrative experience that provides them with tangible opportunities and the empowerment they need to get involved if they so choose.

MUSCO Projects
Marie Enfant Rehabilitation Centre

Support for Community Organizations

Project leader

Lyne Ouellette Director of Multidisciplinary Affairs, Mental Health and Rehabilitation, CHU Sainte-Justine

The project

Provide support to community organizations in their efforts to help families

MUSCO Strategic Goal

Provide direct support to patients and their families

Project Objectives

  1. 1

    Make patients and families aware of the various community organizations whose mission is to support children with physical disabilities and their families

  2. 2

    Help provide opportunities for community organizations and patients to interact

  3. 3

    Help plan community organizations’ activities for families

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Progress Report

Progress Report
Progress Report
Progress Report
Progress Report
Progress Report
Progress Report
Progress Report
Progress Report

Initially, this project sought to support non-profit organizations in planning information and/or training sessions for families at Marie Enfant. This goal has since been refined to focus on strengthening ties between these organizations, healthcare professionals and families so they have a better understanding of, and familiarity with, one another.

Ultimately, this project seeks to enable families seen at Marie Enfant to make more systematic use of health network resources and benefit from more holistic care, and to allow healthcare professionals to be able to direct families to the appropriate community resources at crucial moments. The Initiative is supporting this project by covering the operating costs of the resource person in charge of the project.

A first showcase for community organizations has been put in place in the summer 2024 and the working group plans to organize a second edition of the showcase. In 2024–2025, they will come up with a plan with actions over the short, medium and long term to build lasting ties with community stakeholders. Including social participation as an integral component of a patient’s life and rehabilitation objectives will be front and centre of the thinking process for integrating community partners into the CRME care pathway.

Discovering community organizations (showcase 2024)

Date July 6, 2024
Location Marie Enfant Rehabilitation Center
Number of participants 120

This event brought together stakeholders from various non-profit organizations and families to help the latter better understand the community environment and the support options available to them. The event generated registrations for several patients for non-profit services – an increase of up to 21% in registrations was noted!

Here’s the breakdown of participants:

  • 23 non-profit information booths
  • 80 participants
  • 40 families

 

Photo Credit: Marie Enfant Rehabilitation Center