Improving the quality of life of patients and families begins with a sense of support and a seamless experience between institutions. A number of projects have been developed within the scope of MUSCO to allow patients and their families to feel supported and to streamline and facilitate the corresponding administrative procedures. This involves providing tools and resources to improve logistics and families’ experiences throughout their care trajectory.
Define a clear, transparent process for transferring patients
MUSCO Strategic Goal
Guide the patients and their families toward the appropriate care and services.
Define a clearer and more understandable pathway for patients
Provide better access to information for families, enabling them to better understand their child’s health status and the healthcare system
Enable families to identify available resources more effectively and provide them with all necessary documentation at the time of admission
Improve access to patient-specific care with the appropriate specialists
Provide more effective care and treatment for patients in the short, medium and long term
Improve the patient experience and family satisfaction, including facilitated planning for families
The project is divided into four phases and is currently in Phase 1:
- Phase 1 : Needs analysis: Diagnosis of existing pathways and data collection from professionals and families
- Phase 2: Co-creation of solutions
- Phase 3 : Implementation of solutions and monitoring of changes in clinical and organizational processes
- Phase 4 : Evaluation of the impact on patients/families, professionals, institutions and the healthcare system, and adjustments to the solutions as required
A research and evaluation process called My Way/Mon Chemin was developed under the scientific direction of Dr. Marie Beauséjour to support several of these phases to help achieve the stated objectives. It is now being supported by local reseach teams supervised by Dr. Stefan Parent (CHU Sainte-Justine), Dr. Argerie Tsimicalis (Shriners Hospitals for Children — Canada) and Dr. Janet Rennick (Montreal Children’s Hospital) who, as local contributors, will enable the implementation of the project in each of the partner institutions. This study is also based on an integrated approach with the social design agency Meilleur Monde.
In Phase 1, the following key actions were completed:
- Several workshops and analyses led to the mapping of the cross-institutional pathways for three care profiles: (1) spinal surgery, (2) general orthopedic surgery for patients with a motor developmental disorder, and (3) rhizotomy.
- Several efforts have allowed to obtain the first approvals from different ethics committees of the various institutions. Data collection should start soon.
- In parallel with the ethics process, the working group has already identified the first quick improvements to be implemented. These have begun to be rolled out within the institutions by the Inter-establishment Navigators.